We
were rained out, but a few faithful followers (or die-hard bikers)
came out to brave the weather, anyway. Although we didn't ride,
we did have a good time with the raffles and games. We even
have a few photos of the event.
Our
rain date is rescheduled for Oct 6, 2007. We hope to see you
there!
We
were honored to attend the Fourth International NBIA
Disorders Association Family Conference 2007, which was
held this year in Cincinnatti, OH.
We
met with staff, families, doctors and researchers all living
with or involved with NBIA. It was an amazing experience, especially
in meeting with the families and people living with NBIA. Not
only did we make many new friends, but because of the conference,
we were able to broaden our mission to include more supportive
services, such as offering a research library among other services.
We came back with many great ideas on how Hope's Hope can better
serve the NBIA community and we are eagerly implementing those
additions.
Patty
Wood, the president of NBIA Disorders Association, did an amazing
job of putting on the conference, along with many assistants.
It was a pleasure to be a part of such a wonderful and informative
event.
This
was our first poker run and we're thrilled with the results.
We had a great turnout with 29 bikes and nearly 50 people! We
raised over $800 for our charity.
We
began our ride at Ray Price Harley Davidson, then made stops
at Harris Lake County Park in Holly Springs, Ironhorse Saloon
in Apex, Mapleview Valley Farm Dairy in Carboro, and finally
ended at Triangle Church Recreation Pavillion in Chapel Hill
where we celebrated with a chili cookout and listened to music
by DJ, Seth Felder.
Special
thanks to our sponsors:
Ray
Price Harley Davidson
HOG
of Raleigh
Cooper
Tools
We also appreciate
our breakfast sponsors:
NY Bagels and
Deli located in Cary's Crescent Commons
Dunkin Donuts
on Hwy 55 in Cary
We especially want
to recognize all our participants and volunteers who made this
event such a success! We look forward to seeing all of you again
at the Spring '07 Poker Run.
The Home Improvement
Work Party was a huge success. Several companies came out to help,
as well as many individuals and families. The weather was great
and nearly everything on the list has been completed, except some
siding repairs/painting/caulking. (We'll arrange to finish this
task another weekend).
In addition to being a very productive day, everyone seemed to enjoy
spending time together. It was truly a wonderful community effort.
Many of you may have seen the ABC11 6:00 news on Saturday evening,
airing this story. Reporter Darla Miles came out in the afternoon,
did a follow-up story on Hope and featured the work done for the
Johnston family. To see the original story go to
http://abclocal.go.com/wtvd/news/061804_NW_childillness.html
For those of you who are just catching up with Hope's Hope, here's
a recap:
The Johnstons needed to put their house on the market so they could
move into a handicapped-friendly home. Before they could sell, however,
there were a few things that needed to be done to their house. So
a work party was scheduled for Saturday, 3/19.
The list of jobs included:
Siding
repairs on house
Replace
3 bathroom sinks
Clean
out attic
Clean
roof gutters
Rebuild
shed doors
Replace
garbage disposal
Trim
shrubs
Babysit
Hope & volunteers' children
Sand/Prep/Paint
bathroom
Yard
work (raking, flowers, pinestraw)
Repair
exterior wood trim
Deliver
lunch
Paint
touchup on stairwell
Add
molding strip to kitchen floor
Pressue
wash house & entries
Take
trash & debris to dump
Thanks to
everyone who helped with this project, especially to those who
worked tirelessly for 2 and 3 days, including (in no particular
order):
Steve
Minor
Mike
Powell
Steve
Cicci
Jenny
Minor
Tracy
Powell
Tim
Hoegemeyer
Juan
Lopez
Mark
Johnston
Mitch
Mitchell
Magee
Lopez
Rebecca
Johnston
Jan
Mitchell
Jim
Braman
Chris
Maxwell
Greg
Reiter
Andy
Gibson
Chris
Sellers
Phil
Millis
Rudy
Rowell
Brent
Nelson
Jill
Millis
Tony
Morris
Casto
Fernandez
Tanner
Millis
Marc
Morris
Rodney
Davis
Marcy
Holland
Kevin
Flanders
Doree
Davis
Leiah
Murray
Gina
Flanders
Bruce
Morgan
Jennifer
Overman
Ty
Colwell
Mike
Stevenson
Shelda
Northcutt
Ken
Bruns
Gary
Hundley
Jeff
Billado
Terri
Bruns
Lisa
Hundley
Julie
Billado
Gary
Storm
Britt
Hundley
Eric
Jenkins
Paul
Nelson
Aslund
Hundley
Maurice
Watkins
John
Teal
Aslund's
Roommate
Maurice's
girlfriend, Kera
Danna
Teal
Trish
Peters
If you helped and don't see your name on the list, please contact
us so it can be added. Thank you.
